ADHD & Tactile Defensiveness

One of our children, our son, deals with ADHD and tactile defensiveness daily. These posts talk about our experience with him as he faces his challenges and the things that we've learned and would like to share to help others continue moving forward. Maybe our experiences can be of benefit to you.

  • ADHD & Tactile Defensiveness,  Family

    Our Experience With an ADHD Diagnosis

    Our son was pretty young when he was diagnosed with ADHD, inattentive type. He was halfway through second grade. He would have been seven, turning eight. It would have taken us much longer to have my son tested for ADHD if it weren’t for his second-grade teacher. I am incredibly grateful for her. I have a hard time remembering what happened last week, let alone ten years ago! Bear with me while I recall these events. When my son was a baby, I never really noticed anything, at least not that I remember. I didn’t start seeing anything different until he was a little older. I think I wasn’t paying much attention because we focused on understanding his tactile defensiveness and getting a diagnosis for that. Looking back on it, the only thing that I remember that would have made me question ADHD is that he could never do two-step commands. I always had to ask him to do one step at a time. For example, I could never ask him to put his shoes on, get his coat on, and then put his book…

  • ADHD & Tactile Defensiveness,  Family

    A Mother’s Experience With Tactile Defensiveness

    I am sure there are some of you reading this who are wondering what tactile defensiveness is. It is a term used to describe someone very sensitive to touch. As a result, someone who experiences tactile defensiveness is much more sensitive to touch than usual. Our son, who is 14 years old, has been diagnosed with tactile defensiveness. He received his diagnosis when he was 18 months old. As parents, we became concerned that he wasn’t walking or trying to walk. It also concerned us that he would pull his feet up to avoid standing when we would try and have him stand up on our laps. Also, when we would try and have him stand up on the ground, he would do the same thing. He would never let the bottom of his feet touch anything and do everything he could to avoid it! My husband and I asked our family doctor about our concerns, and he referred us to a physical therapist. When we went to the physical therapist, our son was diagnosed five minutes into our appointment. It was extremely quick. It…

  • ADHD & Tactile Defensiveness,  Family

    Learning to Walk With Tactile Defensiveness

    After our son was diagnosed with tactile defensiveness, we had a lot to learn. As parents, we needed to understand what tactile defensiveness was. My husband nor I had ever heard of it before. We also needed to know what we could do at home to help him. We had to educate our families on what it was also. No one in our families had heard of it either. Our number one concern after his diagnosis was helping him to learn how to walk. It took us almost five months to achieve this goal, from the diagnosis to him being able to walk on his own. These were the steps that we took as parents for him to learn to walk. 1. Physical Therapy We would go to physical therapy regularly. We would never have known what to do if we hadn’t kept going. There were so many different activities at physical therapy that they would do with our son. I can’t remember everything that they did, but the one thing that they used was hanging beads. All they would do is have our son…